The HHT Foundation was formed in 1990 to
aid and support persons with Hereditary Hemorrhagic Telangiectasia (HHT)
also known as Osler-Weber-Rendu Syndrome; to provide patients, families
and doctors with educational information; to foster an exchange of
information about the diagnosis and treatment of HHT between patients,
physicians, researchers, genetic counselors, charitable organizations,
government agencies, industry, academic institutions and the general
public; to raise funds for genetic and clinical research and for
sponsoring special scholarships for studies pertaining to HHT.
This website is operated by the Hereditary
Hemorrhagic Telangiectasia Foundation International, Incorporated. HHT
Foundation International is a worldwide, non-profit organization whose
purpose is to support patients and families and educate medical
professionals. This site is dedicated to the individuals and medical
professionals who encounter the daily challenges of managing Hereditary
Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu
Syndrome.
HHT is a genetic disorder, which affects blood vessels. This disorder is
worldwide affecting males and females of all races and ethnic groups.
Up to 1/3 of HHT patients can have multiple organ involvement, which can
be disabling and or life threatening. HHT can be treated successfully
if correctly diagnosed.
We hope that the information provided on this website is informative and
helpful. We encourage visitors to become a member of the Foundation in
order to stay fully aware of advances made in research, treatment and
education.
If you are a member of the HHT Foundation and request a password and
still are unable to successfully enter the new website, assume that the
Foundation does not have your e-mail address. Please either e-mail your
correct address to us or call us at the 800 number below. We will then
enter your information into our database and you can then log in within a
few hours and request a password which then will enable you to enter
the site.
If you have any comments or questions about the site, please email us at hhtinfo@hht.org.
HHT Foundation International, Inc.,
P.O. Box 329
Monkton, MD 21111
1-800-448-6389
410-357-9932
FAX: 410-357-9931
hhtinfo@hht.org
" To wrest from nature the secrets which have perplexed philosophers in
all ages, to track to their sources the causes of disease, to correlate
the vast stores of knowledge, that they may be quickly available for the
prevention and cure of disease-these are our ambitions,"
-- Sir William Osler